dealing with narcolepsy, wedding planning, a law degree and some new fitness goals…

Je Comprehends..

Many years ago, an ex boyfriend once said “God isn’t fair to girls, the first place you put weight on is where you don’t want it (like your bum and your thighs), and the first place you lose weight is where you do want it (like your boobs).”  Everyone in the room had a good little chuckle at the irony of it all.

I must confess.  I was confused.  I was about 19 at the time.  The concept of “putting on weight” had, quite frankly, not made itself known to me at that stage.  My boobs were a reasonable size (no complaints) and I fit into all my size 10 clothes with room to spare, I preferred a Size 9 jeans when I could get them.

When I was younger I was constantly asked if I had hollow legs, I ate and ate and ate.. finishing everything on my plate, and on the plates of my brothers and sisters, boyfriends, friends.. I wasn’t fussy.. if it was edible.. I would snap it up.  My favourite snack was either pizza pockets or jacket potatoes.  I’d layer the spud up with cheese, sour cream, mayonnaise and other things that make the now weight conscious me raise my eyebrows and think of calories and measurements and treadmills.

I am the Queen of “No, No, I don’t need new clothes, I’ll lose weight and fit into those jeans I haven’t worn in 2 years”.. Pre 12wbt, nothing fit, my wardrobe has been reduced to the same 4 items of stretchy dark coloured clothing on high rotation.  I’m convinced I look skinnier in black.  Most of my underwear is tight and uncomfortable, I look at some of my bras and wonder how they ever fit.  So, before starting 12wbt I reluctantly bought a new sports bra.. a size 14 much to my dismay.Image

I just put on my “new” bra… and it doesn’t fit anymore! It’s too big..!  Conundrum ! !  Do I cheer that I lost weight?  Or do I feel dismayed that my boobs have shrunk?

I finally understand what my ex was saying all those years ago.. I’ve lost weight from the one place on my body that I was happy to have as a big bouncy blubbering mess.. my BOOBS!

Hopefully my bum & thighs catch on soon…


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The race against me

Good morning!

On Saturday as promised, I woke up early and met my future bro-in-law down at the local park for a 5km run.  The run is organised by a group called park run, I strongly recommend giving it a go if there is one in your local area.  Everyone is so friendly, the event is so well organised, its free, and they have even organised for a coffee cart to come down so you can socialise afterwards.  You get a barcode when you register and at the end of the 5kms you scan your barcode and then they upload your times to their website, you even get your PB tracked and everything.  I didn’t register in time so my details are not in the system but I am listed as #48 here.

Ok so, at first glance not such a glowing result.  48th in a pack of 59 people leaves me straggling in my awesome shuffle style somewhere near the back with the old ladies and the injured people.. ok I will confess, there were some old ladies who were flying past me.  However, on Saturday I was very firm in my head that you have to start somewhere, and it is just a race against me.  I’m only trying to beat my time, burn my calories and make my body feel better.  I was hoping for something under 30 minutes, instead I finished in 34 minutes. But that’s ok, the only way is up right?


I do feel sorry for the lovely lady “Susie” who finished just behind me.  I pretty much dragged Susie most of the way, why is it so much easier to encourage a stranger or friend rather than yourself?  Poor Susie was just behind me for the first 2kms or so.  We’d both stop at different times and pant and puff walk for a bit and then keep plodding, eventually I turned to her and said come on, let’s run together.  So we ran side by side for the next  few kms.  When she went to stop I urged her on, and something about it kept me going too, when we got near her family (her kids and their grandparents were cheering her on!) I’d say come on, lets fake it past them and make out like we are not finding this hard.  Eventually she fell behind again but on the last hill I was doing my panty-puff-shuffle-dawdle thing and she came up behind me and said ok it’s your turn now, let’s run together.. and off we went pushing each other up the hill for the home stretch.  It was a lovely moment of camaraderie between two strangers, I could almost hear Chariots of Fire playing in the background.

It made me miss my friend Mel who is constantly saying that she wished I was still down in Sydney to train with her.  We still manage to do a great job of kicking each others butts via Skype and text though so all is not lost.

I’ve actually really enjoyed communicating with people via this blog so far, whether it be for narcolepsy or 12wbt.  There is something encouraging in the thought that you are not doing it alone, not to mention that your little posts into the world wide web are actually being read by someone.

I’m also part of a lovely little forum post on the 12wbt site with a group of ladies where we sometimes refer to ourselves as the “Bikini Girls” we all have upcoming weddings to attend in tropical locations (whether it be our own or a friends) or upcoming holidays that will involve donning a bikini at some stage so we have sort of  banded together and are motivating each other, following each other on My Fitness Pal etc…  Oh the wonders of modern technology.

Now that I have the “wonder drugs” I’m starting to catch up on Uni again which is such a great feeling.  I still don’t feel like I’m quite “there” yet with Uni and fitness and a set routine but I am getting there.  Interested to see how “Weigh in Wednesday” goes because we have had guests the last few days and the tendency to over indulge in BBQ food and unhealthy portion sizes is always great.  I was not as naughty as I normally would be, but I certainly could have been better.  So we will see what the scales have to say about it in a few days time.

Keep :-)lin!


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A matter of opinion

The funny thing about starting anything new is that everyone has an opinion.  I recall reading somewhere that when people were trying to make you feel bad about your weight loss goals you should just smile and say “thank you for your support”.  Bringing the focus back to them and their behaviour seems to work.

I know there are thousands of programs out there, I have explained the one I am doing, Michelle Bridges seems to know what she is doing and I am committed to her program.  I find it really interesting that the first reaction from people isn’t “good on you, I hope you succeed, what a wonderful goal”.  Instead people would rather put their two cents in about why such and such a program is better and why your attempts will fail.  So I’m staying firm and holding my ground and not listening to the blockers!  They can suffer in their jocks when they see me fit and healthy!

Yesterday was SSS (Super Saturday Session) I must admit I have been feeling a little “blah” about exercising these last few days.. Quite frankly I am very over burpees and am surprised at what I will do to get out of doing them!  Anyway, yesterday I ran the furthest I have ever ran in one go in my life.  Instead of the usual run around the lake I stopped the car about 2kms away adding an extra 4kms to the run so around 8kms in total.

I am a “shuffler”, my running style is not pretty… I struggle along, at a pace that is so slow I’m not quite sure it is technically a run.  The poor dog is confused, sometimes walking, sometimes running ahead a bit wondering what is wrong with me.  However, I am also a “stopper”.. I look up and see anything, a tree, a fence, a bend in the road, a person up ahead, if I can get to that thing without dying then I can walk for a bit.  My friend is a “ploddder” she keeps going, plodding along, slowly but never stopping.  So, I decided to combine the two techniques yesterday.  I shuffled, but tried very hard not to stop.  Of course, I did stop, but only at the bubblers, of which there is only 3 on the track.  So really for me this was quite an impressive feat!

I’m still very behind in my preparation for my assessment which is on Wednesday morning.  So today is more study.  It is supposed to be rest day but I think I will smash out a fitness dvd later, I’m quite liking them to be honest (no burpees!)

Tomorrow I have the MWT (Maintenance of Wakefulness Test) which starts at 630am and goes for most of the day. I’m not sure what it will entail, the last test MSLT (Multiple Sleep Latency Test) had me getting into bed for a nap every 2 hours to see if I could sleep at each nap.  Apparently the MWT involves sitting upright in bed with a dim light behind you (not in line of sight) you have to stay awake for 40 minutes and you need to attempt this several times throughout the day.  Honestly, I do not think I will be able to do that, I struggle when I’m actually doing things, but sitting on my own doing nothing.. I don’t like my chances, but I will give it a crack.

I’ll try to squeeze in a workout after that if I feel up to it before heading to the airport with the fiance to pick up some friends.  I am determined to get some sort of fitness in tomorrow!



Did you plan to put on that weight?

This is the question the sleep specialist asked me when I told him that I have put on about 15-20 kilos in the last 6 years.. Boy, did that make me laugh!

It was quite a proud moment to be able to tell the Dr that I have already signed up to the 12wbt and am determined to regain control of my weight.

There was a lot to take in today, I’ll summarise:

  • Nobody really knows what causes narcolepsy;
  • Narcolepsy is basically where you go into REM sleep  (the dreaming part) very soon after falling asleep, instead of a ‘normal’ 60, 90 or 120 minute time period.  Because of this, people with narcolepsy have an abnormal sleep pattern and don’t get as much “good sleep time” as regular people, which makes us feel tired all the time, which is why we have a tendency to nod off at inappropriate moments.
  • At this stage there is no cure, so the symptoms are treated rather than the actual disorder;
  • No more driving for me until I can pass a MWT (maintenance of wakefulness test) I am booked in for this on Monday, if I can stay awake I can have an unrestricted drivers licence (I don’t like my chances);
  • After that, I commence stimulant medication designed to keep me awake during the day;
  • After THAT I go for another MWT and see how the meds are working, if I fail the first MWT this second one may lead to me having a restricted licence which would allow me to drive within 4 hrs of taking medication;
  • We will need to meet with an obstetrician when we decide to have kids to work out whether staying on the meds is a good idea during that time.

All in all the Dr was very positive about being able to help me and very encouraging re my fitness goals.

The Egg Ninja (Photo Source: Flickr Suman0102)

Oh yes, how could I forget the egg story.. I lost the eggs today.. I spent all day looking for them, I was convinced that some kind of egg ninja had crept into the house and stolen the eggs.  Until.. I found them, in the freezer with the bread.. in case you are wondering eggs explode in the freezer.  I’ve heard a lot of people saying that people with narcolepsy do random things and put things in weird places when REM hits them and they are kind of sleep walking.  I was always so pleased I didn’t do things like this.. doo dee doo

I felt quite good today, not too tired, only a little sore from yesterday’s program, today was Toning (Intermediate program).  My new Michelle Bridges DVD set arrived so I dragged the fiance into the lounge room and made him jump around with me.  It was rather hilarious as our lounge room is pretty small but we did it.  The DVD is pretty tough but a great alternative to motivating yourself through the exercises.

I’ve mixed the recipe program up a little so tonight’s dinner was Cajun Fish Stew.  It was delicious!  Tomorrow is our first weigh in day.  Stay tuned for progress!