dealing with narcolepsy, wedding planning, a law degree and some new fitness goals…

3 days without sleep

on September 7, 2012

Happy Friday kids,

I read an interesting article here today.  Quote: “Most people would have to go 3 days without sleep in order to experience the symptoms of sleep deprivation an untreated person with Narcolepsy experiences everyday” Who knows if this is technically accurate, but it sounds about right to me!

I’m certainly feeling some of the side effects from the medication.  I am not hungry.  At all.  Which for me is just about one of the strangest feelings I’ve had!  I’ve always been one of those people who eats everything on their plate, and anything out on the table, anything anyone else leaves on their plates, anything that didn’t get put back in the fridge yet.. etc etc.. However, since taking the meds, I’m just not hungry, rather disinterested in food actually although I’m not noticing such a strange taste in my mouth anymore I just don’t feel like food.  Today I only made it half way through my sandwich.. anyone that knows me will know that this is unheard of for me!

I’m really feeling it in the late afternoon/early evening when the meds wear off.  Very very zonked, tonight I needed a nap when I got home from Uni.  As far as I can work out the meds work for about 4 hours.  I think the feeling I’m getting at night is just the real narcoleptic me kicking back in, it is just such a contrast to the medicated me that it is a bit of a shock to the system.  Comparing how I used to feel each day to this new energetic me is chalk and cheese.

That said, I haven’t been very good with my exercise this week.  I’m ordering a Polar HRM with the 12wbt discount this week so that I can track my calories because it is really hard to know if you are doing enough each day.  I’m also doing a 5km run tomorrow morning with future bro-in-law, there is a free running club that goes from just down the road at 7am each Saturday.  So I’m giving that a go.

I’ve been a bit naughty today and haven’t studied, instead I’ve been distracted looking at wedding dresses on line, I’ve worked out a few that I want to try on, I’ve also found a few that I’m only trying on if I win lotto… It is all great incentive to stick to the program and lose some weight!




3 responses to “3 days without sleep

  1. shesgotninelives says:

    I definitely know where you’re coming from! What meds are you taking if you don’t mind me asking? I was on Ritalin and it cut my appetite to the extent that I dropped 25 lbs in a few months. I just had no desire for any more food than the bare minimum. Also I love the picture you posted. Hope you don’t mind if I reblog. Only those who have narcolepsy really truly understand it. Glad you’ve found some relief with your meds! I’m currently on Modafinil and it seems to be alright.

    • nic77e says:

      Of course you can re-blog, I’m flattered you did! You can order that print on etsy, there is a link to it when you click on the picture. I’m thinking of getting it as it really touches a nerve for me. I’m on dexamphetamine, apparently it is the most common medication to use here in Oz, Modafinil is the 2nd choice for some reason. It’s tricky because the sleep specialist says, do you have any questions? And really your question is sure can you leave me alone with the internet so I can google those meds a bit!? haha. From what I can work out the Modafinil is not as addictive as the Dex so I am going to speak to him about that when I see him next week.
      I agree, it makes a difference to be able to read about other people going through similar things, helps to not feel like you are imagining it or over-reacting. Nice to know that yes, there is actually something wrong with me. but no, I am not the only one, and there is always someone worse off.
      Your nightmares and paralysis sound very tough to deal with I don’t know how I would handle that.

  2. shesgotninelives says:

    Reblogged this on shesgotninelives and commented:
    Great read – I can definitely relate!

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